From: Development of a patient reported outcome instrument for chronic sialadenitis
Physical symptoms | Number of participants (N = 10) | Total mentions | Illustrative quote |
---|---|---|---|
Swelling | 9 | 40 | “There’s just so much swelling it looks like a deformity on the outside of my face.” -Interview 7 |
Pain | 7 | 25 | “I dealt with these bad sharp pains for quite a while” -Interview 2 |
Volume of Saliva | 4 | 13 | “The dry mouth is the only thing I’ve noticed.”- Interview 6 |
Texture of Saliva | 2 | 3 | “…my gland would swell up and then there would be a large discharge and a lot of sand and grit in my mouth…”- Interview 4 |
Taste of Saliva | 2 | 5 | “…it (saliva) would have a different taste. It was pretty salty, like a mineral, and sometimes it kind of had a metallic or mineral salt kind of taste.”-Interview 2 |
Drooling | 4 | 8 | “…it seems like I’m drooling more.” -Interview 5 |
Difficulty chewing/trismus | 4 | 11 | “I couldn’t open my jaw to the full capacity that I can usually open it, when I had the swelling” -Interview 8 |
Difficulty swallowing | 3 | 5 | “It just feels like the passageway isn’t fully open and that there is a blockage. Like it has to go around something it shouldn’t normally go around.” -Interview 6 |
Palpable stones in mouth | 6 | 8 | “I know it (stone) was always there because I could always feel it in my mouth.” -Interview 3 |
Painful eating | 6 | 14 | “It was a sharp pain, it felt like you were eating something sharp that stabbed you in the gums.” -Interview 2 |